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US drug firm offers cure for blindness at $425,000 an eye

Spark Therapeutics says responsible price for Luxturna gene therapy ensures access for patients with retinal defect A drug whose inventors claim it can cure a rare form of blindness is to be one of the most expensive medicines ever sold at $850,000 (630,000). Luxturna is injected directly into the eye to address the root cause of visual impairment by replacing a defective gene in the retina. It is the first gene therapy to be approved for use in the US, and was given the go-ahead by the Federal Drug Administration…

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The Charlie Gard case is heartbreaking, but society cant shun its experts | Gaby Hinsliff

The public realm cant function without trust, says Guardian columnist Gaby Hinsliff Your children are not your children. They are the sons and daughters of Lifes longing for itself. They come through you but not from you, And though they are with you they belong not to you. Those are the opening lines of Charlie Gard, the desperately sick baby whose parents have lost a long court battle against having his ventilator turned off. For in a sense, both case and poem are about the same question: to whom do…

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General election: May falters during challenge over record on public services

PM confronted by nurse over issue of low pay in Question Time special, while Jeremy Corbyn is questioned over Trident and national security Theresa May came under sustained pressure over the Conservative partys record on public sector pay, mental health services and social care in a combative election edition of BBC1s Question Time broadcast less than a week before polling day. The prime minister faced a string of awkward questions from members of the public, including a challenge from a nurse, Victoria Davey, who left May faltering after confronting her…

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